Fibromyalgia, CMP, M.E and Me

     So I guess your probably curious what this page is about?! Hopefully the following guide will explain. Devin Starlanyl's article below is the most concise and easily understandable guide to Fibro and CMP I've seen. The highlights, italics and bold text are mine, they are the most pertinent points which I hope you will find helpful in understanding me a little better. When I say Im not up to something, maybe you now get some idea of how Im actually feeling. I also suffer with osteoarthritis in my neck, and probably left shoulder and back (so the Doc says) and intense nerve pain so am on a cocktail of drugs to try and at least make things bearable so that i can get on with my daily life. 
Thank you for your understanding, please ask me if you have any questions, Lynsey x

Fibromyalgia and Chronic Myofascial Pain:
A Guide for Relatives and Companions
by Devin J. Starlanyl

Fibromyalgia (Fie-bro-my-al-gia) Syndrome (FMS) is a chronic invisible illnesses.
It is not a musculoskeletal dysfunction. It's a disorder of the informational
substances such as neurotransmitters, hormones, peptides, and other biochemical
messengers which regulate and run the systems of the body and mind. It causes
hypersensitivity to all sorts of stimuli, so it can amplify pain. There are no trigger
points (TrPs) in FMS, only tender points, which do not refer pain.
Fibromyalgia often occurs with Chronic Myofascial (my-oh-fass-shall) Pain (CMP),
which is a neuromuscular chronic pain condition with TrPs that can cause muscle
weakness and dysfunction, and incapacitating, intolerable pain. TrPs can also
cause extreme dizziness, migraines, buckling knee, clumsiness and calf cramps.
Pains in localized parts of the body — the back, hands, neck and other areas — are
a symptom of TrPs. Achy, body-wide pain is a symptom of FMS, but all widespread
pain is not FMS. TrPs can occur all over the body in CMP, for example, causing
widespread pain. FMS will amplify the pain of TrPs.
In FMS, sleep is often fragmented, and there seems to be a problem with the
microstructure of sleep. People with FMS wake up feeling that they haven’t slept
at all. You are denied refreshing sleep, and sleep is when the body does much of
its repair and biochemical regulation. The person with FMS can’t recover from
exercise, stress and work like healthy people. They are constantly in a state of
sleep deprivation unless they find a combination of medications, lifestyle
modifications and diet that work for them.If people with TrPs are immobile at any
time, such as during travel or sitting in a meeting or movie, their muscles get stiff
and painful. It can feel like you are wearing a wet suit several sizes too small,
your range of motion is limited, and your muscles are weak. Morning stiffness
with both of these conditions can be severe. Symptoms fluctuate from hour to
hour and day to day and may worsen with changes in barometric pressure,
humidity, cold or heat. If you overextend your limits, you may have extra pain for
days or weeks.
Symptoms can be severe, yet blood tests, X-ray and other common diagnostic
tests cannot diagnose FMS or TrPs, although there may be a way to document FMS
(see Algometry). TrPs are easy to diagnose if your medical care provider has been
trained to do so. FMS and CMP are two of the most common sources of chronic
pain, and the most undiagnosed or misdiagnosed of illnesses.
Most FMS patients have memory and cognitive impairments. Doctors often refer
FMS patients to psychologists or psychiatrists because of this, yet studies show
that psychologically, these patients have no more abnormal psychology than
arthritis patients. People with FMS and CMP are often misunderstood and doubted,
and this, in addition to the chronic pain and other symptoms, could cause anyone
to feel depressed and confused. An American College of Rheumatology study in
1992 found that the impact of FMS on your life is as bad, or worse, than
Rheumatoid Arthritis. They listed one major factor in this as "clinician bias". FMS
& CMP patients don't look sick and their symptoms vary, so they are often
misunderstood and disbelieved by clinicians, family and friends.
FMS and CMP are not progressive, but symptoms may worsen if the perpetuating
factors are not identified and dealt with promptly and adequately. If you have FMS
and CMP, you have a history of widespread pain and wake up every morning
feeling like you’ve been run over by a truck. You may have headaches and loss of
balance. Looking both ways when going into traffic can cause dizziness. You may
have short-term memory loss and other cognitive dysfunctions, and you may not
always have control over your muscles.TrPs are incredibly painful areas that often
feel like knots, hard lumps, or taut bands of fibers in the muscles, and they can be
everywhere and often refer pain to some other part of the body. They can cause
irritable bowel syndrome, dizziness and loss of balance, buckling ankles and knees,
pelvic pain, painful intercourse in women, impotence in men, and many more
symptoms. The tightened and rigid myofascia surrounding the muscles can entrap
nerves, blood vessels, and ducts. TrPs can cause blurring of the eyes, double
vision, leg cramps, trouble swallowing, sciatica, numbness or tingling. Carpal
Tunnel Syndrome, Migraines, TMJD, Piriformis Syndrome, and Thoracic Outlet
Syndrome are some of the conditions that can be caused by TrPs. Muscles
contracted by TrPs can pull bones out of alignment and lead to osteoarthritis.
There is no cure for FMS right now. There are medications and therapies that help
some symptoms of FMS and CMP. The key to reducing symptom load is always to
identify every perpetuating factor (such as lack of restorative sleep, poor diet and
posture, chronic pain, etc.) and deal with each of them as thoroughly as possible.
It takes a commitment on the part of the patient to practice a healthy lifestyle,
including good nutrition, a program of gentle stretching and moderate exercise,
and avoidance of smoking and other bad habits. There must be recognition by
both the patient and her/his companions in life (including the medical care team)
that there are limitations for people with FMS and/or CMP. It isn't easy to find the
right balance to optimize the quality of life. Be patient, compassionate, and listen.
Ask if there is something you can do to help.

Excerpted from Fibromyalgia and Chronic Myofascial Pain Syndrome: A Survival Manual by Devin J. Starlanyl
and Mary Ellen Copeland M.A. M.S., © 1996 by the authors. All rights reserved.
This information may be freely copied and distributed only if unaltered, with complete original content
including: © Devin Starlanyl 2002.